
An extraordinary dispute has broken out between people with autism and a charity that aims to help them. At stake is how such people are perceived by the general public.
Like many people with autism, an autistic blogger who goes by the screen name āAbscoutā is angry about the way the condition is portrayed by some charities. To try and paint a different picture, Abscout set up a spoof website called NTSpeaks.org, a parody of the site of the New York-based charity . The NT stands for neurotypical, a term sometimes used by people with autism to describe the rest of the population.
Last week, however, in response to demands from Autism Speaks, Abscout took the site down. Autism Speaks claims the site infringed its copyright, and that it could have confused people looking for information about autism. That in turn has outraged Abscoutās supporters, who say that Autism Speaks is suppressing the views of the very people it is supposed to represent and help.
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āIf we do speak, weāre only allowed a voice if it agrees exactly with the people who say theyāre speaking for us,ā says Amanda Baggs, another based in Burlington, Vermont. āThat keeps people believing the same thing Autism Speaks wants people to believe, including every negative stereotype of autism out there.ā
Autism Speaks says its aim is āto change the future for all who struggle with autism spectrum disordersā. One of its stated goals is to ācureā autism ā an aim some people with autism find offensive. āThe autism spectrum is something that is intrinsic to our personalities,ā says Ari Neāeman, president of the Autism Self Advocacy Network in Baltimore, Maryland. āWe can no more separate the autistic part of ourselves than we could our gender or race.ā
āOne of the stated goals of Autism Speaks is to ācure autismā ā an aim some people find offensiveā
Particularly galling for people with autism, he says, is a video on the charityās site called , in which mothers of children with autism talk about the emotional and financial impact the condition has had on their lives. āAutism Speaks puts out a very fear-based message,ā says Neāeman.
carried a much more assertive message. Under the slogan āLearn the signs of NTismā, it listed ādislike for people who are differentā, ārefusal to accept that there is a problemā and āconforming attitudeā. Another one of its headlines read, āNTs destroying AS/Auties pride and joyā.
Autism Speaks says that people could have confused NTSpeaks.org with its own site, as it carried a similar logo. āIf an improper use of our name or logo creates confusion among those we serve about the source of information, it is a disservice to all,ā a charity spokesman says.
Baggs insists there is a need for people with autism to publicise their own messages. She says the charities āchange a lot about how autistic people are treated and understood by other people and by professionalsā.
Gareth Nelson, who founded the autism rights group is doing his bit. In protest at Autism Speaksās actions, he has secured the and domains and posted new parodies of Autism Speaks there. āIt is important to do this in order to stop Autism Speaks from simply silencing their critics and to show them that we are not going to sit back while they intimidate people,ā he says.
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