Â鶹´«Ã½

Seventeen years ago, Augusto Odone‘s six-year-old son, Lorenzo, started bumping into furniture and losing his hearing. Doctors diagnosed a rare degenerative condition called ALD and gave him two years to live. But Odone had other ideas. Racing against the clock, he and his wife pestered scientists, devoured neurology textbooks and learned the language of biochemistry. The result was a controversial do-it-yourself treatment known as Lorenzo’s oil-and a heart-rending Hollywood movie of the same name. Today, Lorenzo is alive but unable to move and being cared for at the family home. This isn’t good enough for Odone, who has set up a pioneering funding organisation to…