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Health

Victims of genetic discrimination speak up

By Peter Aldhous

2 November 2005

EVIDENCE is growing that employers and insurers are discriminating against people whose genes make them susceptible to serious diseases.

In the most complete survey yet of possible discrimination, around 1 in 12 people who have taken a genetic test said they had been disadvantaged as a result – for example, by being denied appropriate life insurance.

The survey is part of the pioneering Genetic Discrimination Project, which is attempting to document the extent of genetic discrimination in Australia and help any victims seek redress. A team led by Kristine Barlow-Stewart, who heads the Centre for Genetics Education in Sydney, analysed questionnaires…

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